Two weeks on and two more blood tests and my platelets are “behaving like the stock exchange” as my doctor put it. Up and down like a yo-yo.
Last time I posted, a fortnight ago, they had crept up to 34 from a scary low of 22. The following week they bounced to a magnificent 55, lifting my spirits almost as high.
Alas, this week’s blood test shows them back down at 35. However, thanks to my doctor’s meticulous tweaking of the Chinese herbs each week in response to my blood chemistry results, everything else in my system is behaving well, with all indicators sitting where they should be.
My neutrophils (white cells) might be a touch high, and busily munching on my platelets. But I’m not panicking, and neither is my doctor. We’ll wait and see what next week’s blood chemistry shows.
Emotional Highs and Lows
Despite that lovely number of 55, this fortnight has been a real emotional see-saw, with lows outnumbering highs two or three to one, and frequent mood swings every day. At times it has seemed like every hour. As soon as I pick myself up, some loss of control over my life – usually resulting from dealing with a health or welfare bureaucrat or real estate agent – sends me tumbling down again.
Some of this depression is directly from the steroids (depression is a known side-effect from long term corticosteroid use), but a lot is from the uncertainty of my financial situation and the frustrations of trying to find somewhere cheaper to live to match my reduced income.
The past two weeks have been laden with delays, frustrations and intense anxieties, and I have to say ‘emotional lability’ (a tendency to burst into tears with little warning) is quite exhausting. And in itself, quite frustrating!
This Week’s Bright Side
The big plus this week is that my energy and brain power are FINALLY coming back, thanks to the wonderful herbs which I’ve been taking religiously, twice a day, and the restricted diet, which I’ve been sticking to. I feel almost normal again and managed to do the 25 minute walk to my doctor’s surgery (it’s gently downhill), tho’ I had to catch a bus home again.
Another plus is that, with the help of my adult children, I’ve found a cheaper place to live in the same neighbourhood, and my friends and family will help me make the move in a couple of weeks.
And my lovely doctor took pity on me over the expense and utter lack of flavour and texture in commercial gluten-free bread and has allowed me to have a small bowl of porridge for breakfast again!
It’s a glorious Indian Summer Autumn here in Sydney. I can walk through my favourite park or just sit there in the sun, and for the first time in a long time, I’m feeling OK!
Looking at my options as I learn to live with chronic ITP (immune-mediated thrombocytopenic purpura). I’ll be considering diet, exercise, alternative remedies, medication side-effects, mood swings, body image, etc. But I promise I won't be gloomy! I‘ll keep my sense of humour, and "always look on the bright side of life!"
Subscribe to:
Post Comments (Atom)
Labels
adrenal exhaustion
(6)
adrenal glands
(5)
adrenal insufficiency
(2)
alcohol
(1)
anaemia
(2)
auto- immune disease
(3)
bleeding
(2)
blood platelets
(7)
blood sugars
(1)
blood tests
(12)
body image
(1)
bruises
(1)
calcium
(4)
calcium supplements
(1)
Chinese herb
(2)
Chinese herbs
(9)
cholesterol
(3)
cholestyramine
(3)
Christmas
(2)
clinical studies
(1)
clotting
(1)
coffee
(4)
cordyceps
(4)
corticosteroids
(6)
cortisol
(10)
depression
(8)
diet
(5)
energy loss
(7)
exercise
(3)
exercise. meditation
(1)
feedback
(1)
folate
(3)
folinic acid
(2)
fragile bones
(4)
Guinness
(1)
H pylori
(4)
haemoglobin
(7)
headaches
(3)
herbs
(1)
hormones
(2)
hydrocortisone
(1)
hypothyroidism
(3)
immune system
(3)
insulin
(3)
iodine
(2)
irbesartan
(1)
ITP
(1)
IV immunoglobulin
(3)
keeping positive
(4)
kidney damage
(2)
listening to the patient
(1)
low platelet counts
(1)
magnesium
(3)
medical research
(1)
metallic taste in mouth
(1)
migraines
(1)
muscle cramps
(2)
N-Plate
(1)
neurotoxins
(1)
Paleolithic diet
(1)
palpitations
(8)
pharmaceuticals
(3)
pituitary gland
(6)
platelet numbers
(1)
platelets
(12)
Pred. Rituxan
(1)
prednisolone
(15)
protein
(2)
pumpkin face
(1)
Rituximab
(2)
Romiplostim
(1)
shakiness
(9)
sleep
(3)
sodium
(3)
Staphylococcus
(2)
steroid hyper
(1)
steroid pulse
(2)
steroid side effects
(11)
sunshine
(4)
swollen face
(5)
TCM
(2)
thrombocytes
(4)
thyroid
(1)
toxin overload
(2)
Vitamin D
(3)
vitamins
(3)
weaning off steroids
(8)
weight gain
(4)
zeolites
(1)
Well, thank goodness for that!
ReplyDelete